The first 6 months of 2019 were not my favorite. Except when I started playing Athleisuremag. Lu’s medical concerns were the first and foremost cause of stress, but the tension took an emotional toll on all of the rest of us, too. We have been having a rough time. After … Continue reading
I have been trying to find the words for this post for a week now and am no closer than before; I was sort of hoping to have some results to post here, but nothing yet. Friends continually offer concern and support so I do want to update even without … Continue reading
Almost immediately after my last post, I hit a wall. All of the stress and pressure of the past few months caught up to me and I had a significant panic attack/nervous breakdown/something which was exacerbated when I went to my doctor and mysteriously they claimed he wasn’t covered by … Continue reading
Everything with Lu sort of calmed down after the MRI. Her symptoms are still there, but they are stable and we still don’t know what’s behind them so we can’t really be proactive. There likely won’t be any new, big information until we start talking about eye surgery in the … Continue reading
Lu’s fall and the knee fracture may not necessarily be connected to her subsequent symptoms, but it seems like the starting point of the health concerns and doctor visit merry go round we have gotten trapped on. She fell on December 27. Her eye crossed January 6. The third issue … Continue reading
Sigh. Last week, Neurologist called with the MRI report and seemed convinced that the excess spinal fluid was the cause of at least some of Lu’s issues if not all. Unfortunately, after he spoke with Neurosurgeon, he rescinded that answer. Our Neurosurgeon visit today offered no further illumination; the pineal … Continue reading
Our amazing neurologist called yesterday morning and while he had not personally seen the scan yet, he had spoken to the radiologist and there is something there. #NOTATUMOR, but there IS extra fluid on her spinal cord – pretty much all over, from her neck down to the lower spine. He has referred us to … Continue reading
Mission accomplished! We made it the required 3 weeks of cold and fever symptom free time and got toLu’s appointment early today – no traffic heading into the city. She changed into hospital jammies and calmly played and colored while they took her vitals and we waited for her turn. … Continue reading
Last Thursday was really hard and it pushed me right over some kind of edge where I had been teetering for the preceding few weeks. I had been barely holding on and that was a breaking point. I have since regrouped and just keep putting one foot ahead of the other. … Continue reading
Today was… disappointing. And stressful. AGAIN, I banked on making some progress and having a Plan and we got nothing. I update here because not everyone is on Facebook and so many people love Lulu that it is overwhelming to have individual conversations with everyone; it is easier to put … Continue reading
