Blessing

According to my friend Teri and Google, a group of unicorns is called a blessing – which is possibly the best thing I’ve ever heard. My group of friends is a blessing for sure. A couple of weeks ago, I came across an article about a 6′ tall light up … Continue reading

Back to Reality

After a much-needed summer break, we are back to school and back to routine around here. We went to the beach and camping and to Rye Playland. We celebrated Cole’s 10th birthday and spent time with friends, and refreshed some energy. Now it is mid-September and we are officially at … Continue reading

Remembering 2019

Two updates in two days is a little much, but I am nothing if not extra. Lu and I visited her pediatrician for a follow-up/check-in yesterday, and SHOUT OUT TO DR. ANDY. Per his official recommendation, under doctor’s orders, we have canceled all of our specialist appointments for the next … Continue reading

Planning

So the “vacation” I referenced in the last post was maybe something of a misnomer; we have not really stopped attending to all of the various issues so much as slowed down a bit. Lu had an orthopedist appointment the DAY I posted where he referred her for some physical … Continue reading

Vacation

The first 6 months of 2019 were not my favorite. Except when I started playing Athleisuremag. Lu’s medical concerns were the first and foremost cause of stress, but the tension took an emotional toll on all of the rest of us, too. We have been having a rough time. After … Continue reading

Just Keep Swimming

Everything with Lu sort of calmed down after the MRI. Her symptoms are still there, but they are stable and we still don’t know what’s behind them so we can’t really be proactive. There likely won’t be any new, big information until we start talking about eye surgery in the … Continue reading