Sigh. Last week, Neurologist called with the MRI report and seemed convinced that the excess spinal fluid was the cause of at least some of Lu’s issues if not all. Unfortunately, after he spoke with Neurosurgeon, he rescinded that answer. Our Neurosurgeon visit today offered no further illumination; the pineal … Continue reading
Our amazing neurologist called yesterday morning and while he had not personally seen the scan yet, he had spoken to the radiologist and there is something there. #NOTATUMOR, but there IS extra fluid on her spinal cord – pretty much all over, from her neck down to the lower spine. He has referred us to … Continue reading
Mission accomplished! We made it the required 3 weeks of cold and fever symptom free time and got toLu’s appointment early today – no traffic heading into the city. She changed into hospital jammies and calmly played and colored while they took her vitals and we waited for her turn. … Continue reading
Last Thursday was really hard and it pushed me right over some kind of edge where I had been teetering for the preceding few weeks. I had been barely holding on and that was a breaking point. I have since regrouped and just keep putting one foot ahead of the other. … Continue reading
Today was… disappointing. And stressful. AGAIN, I banked on making some progress and having a Plan and we got nothing. I update here because not everyone is on Facebook and so many people love Lulu that it is overwhelming to have individual conversations with everyone; it is easier to put … Continue reading
Everyone has asked us 853 times what we need. And really, aside from cloning me and/or providing more hours in a day, there isn’t much. But we absolutely could use some good juju around here. Please send some misheberachs or positive vibes or whatever prayers you’ve got our way. Sending Love … Continue reading
There was supposed to be a crazy mega snowstorm this weekend – and everyone in the area prepared for snowmageddon… which never showed up, thankfully. The weather threatened to mess with our plans, but I am so glad it held off. We had the Best Broken Leg Dance Party you … Continue reading
I started the day mindfully taking the morning off from stress and anxiety and heading to brunch with a friend to watch the demolition of the old Tappan Zee Bridge and share a day cocktail or two. There was some miscommunication and unanticipated crowds and I watched from outside for a … Continue reading
At the end of my recap the other day answering all of the questions people have about what has been going on in the Ludwig house, I posted a pic of Lu and I. It was a pic I also shared on Instagram and Facebook wishing my baby girl a … Continue reading
Dusting this space off a bit to go back to this blog’s original purpose way back in 2009: getting news and pics to far away family. In the past few years, life has happened – as the kids get bigger and Baby To Go grows, the time to devote to … Continue reading
