Fatigue

Sigh. Last week, Neurologist called with the MRI report and seemed convinced that the excess spinal fluid was the cause of at least some of Lu’s issues if not all. Unfortunately, after he spoke with Neurosurgeon, he rescinded that answer. Our Neurosurgeon visit today offered no further illumination; the pineal … Continue reading

An answer

Our amazing neurologist called yesterday morning and while he had not personally seen the scan yet, he had spoken to the radiologist and there is something there. #NOTATUMOR, but there IS extra fluid on her spinal cord – pretty much all over, from her neck down to the lower spine. He has referred us to … Continue reading