Just Keep Swimming

Everything with Lu sort of calmed down after the MRI. Her symptoms are still there, but they are stable and we still don't know what's behind them so we can't really be proactive. There likely won't be any new, big information until we start talking about eye surgery in the summer. Thank God for … Continue reading

Three Months

Lu's fall and the knee fracture may not necessarily be connected to her subsequent symptoms, but it seems like the starting point of the health concerns and doctor visit merry go round we have gotten trapped on. She fell on December 27. Her eye crossed January 6. The third issue began on January … Continue reading

Fatigue

Sigh. Last week, Neurologist called with the MRI report and seemed convinced that the excess spinal fluid was the cause of at least some of Lu's issues if not all. Unfortunately, after he spoke with Neurosurgeon, he rescinded that answer. Our Neurosurgeon visit today offered no further … Continue reading

An answer

Our amazing neurologist called yesterday morning and while he had not personally seen the scan yet, he had spoken to the radiologist and there is something there. #NOTATUMOR, but there IS extra fluid on her spinal cord - pretty much all over, from her neck down to the lower spine. He has … Continue reading